Page 114 - HA Convention 2016 [Full Version]

HOSPITAL AUTHORITY CONVENTION 2016 Masterclasses

M7.3 Expanded Newborn Metabolic Screening in Hong Kong: 16:15 Convention Hall A
Collaboration in Implementation

Role of Midwives and Obstetric Nurses in Education and Obtaining Consent for Metabolic Screening
Lai CY
Department of Obstetrics and Gynaecology, The Chinese University of Hong Kong, Hong Kong

Metabolic screening for newborn has been implemented in many developed countries for decades. In Hong Kong, The
Chinese University of Hong Kong had started a pilot newborn metabolic screening as an opt-in service for parents since
2013. In this programme, the pre-test counselling and parent education are important elements to raise public awareness
about the significant impact of inborn error metabolic diseases and the benefits of early diagnosis. The best time to explain
the detailed information to parents will be during antenatal and immediate postnatal period. Nurses and midwives are the
key personnel to give bedside explanation to parents as it allows better interaction and communication, pamphlet and video
are used as supplementary tools. Before obtaining written consent, nurse should introduce parents the background and
consequences of the inborn error metabolic diseases in the screening panel, method and timing of screening, possibility of
the laboratory results and followup measures. The retention and use of residual dried blood spots should also be explained
and approval should be obtained in advance. The benefits of this screening should be addressed and yet autonomy should
be respected.

Tuesday, 3 May

M7.4 Expanded Newborn Metabolic Screening in Hong Kong: 16:15 Convention Hall A
Collaboration in Implementation

Early Experience of the Department of Health and Hospital Authority’s Pilot Study Implementation at Queen
Elizabeth Hospital
Leung KY
Obstetrics and Gynaecology Department, Queen Elizabeth Hospital, Hong Kong

A pilot project (under Department of Health and Hospital Authority) on universal newborn screening for inborn error of
metabolism (IEM) has been implemented in Queen Elizabeth Hospital since 1 October 2015. Before implementation, we need
to plan our workflow including parental education, obtaining consent, sampling, and transportation of blood samples. It is
important to set up a mechanism for screening all eligible newborns. To get staff involved and prepared, a lecture programme
and a site visit to a IEM laboratory were arranged. A doctor participated in the information video for patients. We have
assigned designated nurses, phlebotomists and supporting staff to this pilot programme. Some logistic problems will be
shared during the presentation.

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